Ehlers-Danlos syndromes (EDS) are a group of rare inherited conditions that affect connective tissue. Connective tissues provide support in skin, tendons, ligaments, blood vessels, internal organs and bones.
Symptoms
There are several types of EDS, they share some symptoms;
- an increased range of joint movement (hypermobility)
- stretchy skin
- fragile skin that breaks or bruises easily
Depending on the type of EDS additional symptoms may be;
- loose, unstable joints that dislocate easily
- joint pain
- extreme tiredness (fatigue)
Education strategies
Children and young people with EDS should be careful about activities that put a lot of strain on joints or put them at risk of injury. Specific advice will depend on which type of EDS they have and how it affects them. They may be advised to avoid some activities entirely, such as contact sports. Lower-risk activities, such as swimming may be recommended instead.
If fatigue is a problem it is important to teach ways to conserve energy and pace themselves. It may also be necessary to provide a modified timetable and/or allow for rest breaks. The following link provides strategies to support fatigue: Managing fatigue – Support for schools and settings (devon.gov.uk)
For more information
Use the following link for more information about EDS
School toolkit for JHS and EDS – School Toolkit for EDS and JHS (theschooltoolkit.org)