- What is Transforming Care?
Transforming Care is a national programme sponsored by NHS England and the Association of Directors of Adult Social Services. The programme is looking to drive improvements in care and support for people with a learning disability and/or autism who may have concerns about their emotional wellbeing and mental health or who may be behaving in ways that make it difficult or challenging for the family and / or professionals to manage.
The Transforming Care work has 3 aims:
- Making sure there are better services in the community so less people need to go into hospitals
- Making sure people don’t stay in hospitals longer than they need to
- Making sure people get good quality care and support in hospital and in the community.
It is about providing care that is local and meets the individual’s needs to avoid the need to be admitted to a specialist Mental Health hospital – unless this is absolutely in the best interest of the young person or Adult.
- Who is it for?
Transforming Care is about improving the lives of children, young people and adults with a learning disability and/or autism.
- What's available for me and my family and how do I access it?
There are support services in your local community for children and adults who are currently in hospital or at risk of going into a Mental Health hospital because of mental health problems, learning disabilities, or challenging behaviour. If you or someone you know who has LD and or Autism and are worried about their Mental Health and/or their behaviour, then the range of support available includes the following:
- You could speak to your school SENCo or teacher about your concerns and difficulties and they may be able to offer support and advice
- You could ask health service professionals such as your GP, or if you are working with other professionals then your Paediatrician, Health Visitor, Speech and Language Therapist or Nurse.
- If you are known to the Disabled Children’s Social Care service you could speak to your social worker who may be able to provide some support and guidance.
- If you are known to CAMHS or Severe Learning Disability Team you should make contact to discuss your concerns. If you are not known to CAMHS or the Severe Learning Disability Team then you can make your own referral by contacting your GP.
- Care, Education and Treatment Reviews
One of the steps that may be of value where the situation is becoming very unmanageable is to have a multi-agency review of the care and support being provided. This can either happen when someone is already in a hospital because of a mental health problem or due to their challenging behaviour or ideally can happen earlier to help prevent the need for hospitalisation.
This is an all-day review by a panel consisting of a chair (a health commissioner), a clinical expert and an expert by experience (a parent / carer who has experienced similar challenges for their children). The panel meet with the young person and their family/carer, as well as the health, education and social care professionals involved in their care. After hearing views of the young person and their family/carer and reviewing their care in accordance with the Key Lines of Enquiry (KLOEs) set in the CETR national policy, the panel makes recommendations which are shared with the child or young person and their family/carer and the professionals. These recommendations are passed to the young person’s care coordinator who will incorporate them in their ongoing care plan and to respective health and social care agencies to be incorporated in the young person’s care and support plans. The CETR aims to strengthen community support to prevent unnecessary admission to hospital.
Who is eligible?
All children and young people with a confirmed diagnosis of learning disability (LD) or autism (ASD) who are at risk of being admitted into a specialist mental health or learning disabilities hospital on account of their mental health should have a CETR.
Who requests the CETR?
For an eligible child or young person, where they meet the criteria above, requests can be made from; Health, education or social work professionals. Families and young people can request a CETR through the professional they are working with.
- Useful links
- Care, Education and Treatment Review: Code Toolkit
- Easy-Read Care and Treatment Reviews (CTRs) Policy
- Care and Treatment Reviews Policy
- Community CETR Workbook
- Getting it right for people with learning disabilities going into hospital because of mental health difficulties or challenging behaviours: What families need to know