- Do you commission palliative care for children and young people with life-limiting and life-threatening conditions between the ages of 0 and 25? (yes/no)
- Do you have a published strategy or care pathway for children with life-limiting and life-threatening conditions? If so, please provide a link or an attachment.
- Does your local sustainability and transformation plan set out what support will be available for children with life-limiting and life-threatening conditions? (Yes/No).
- Do you assess numbers and needs of children and young people with life-limiting and life-threatening conditions between the ages of 0 and 25 among the population you serve (yes/no)? If yes, please tell us how you assess this and how many children and young people with life-limiting and life-threatening conditions there are in your area.
- Do you jointly commission palliative care for children and young people with life-limiting and life-threatening conditions between the ages of 0 and 25 with your local clinical commissioning groups in a way which is consistent with the Children and Families Act 2014? (yes/no)
- Do you take steps to integrate assessments, plans and services for children and young people with life-limiting and life-threatening conditions between the ages of 0 and 25 (yes/no)? If yes, please tell us how.
- Do you commission short breaks (respite) for children and young people with life-limiting and life-threatening conditions between the ages of 0 and 25 (yes/no)? If yes, please state how much you spent on this in 2017/18.
- Do you commission any of the following services for children with life-limiting or life-threatening conditions? If yes, please state which outcomes you ask service providers to achieve and how much you spent on them in 2016/17:
- Voluntary sector children’s palliative care services (including children’s hospice services) (yes/no)? If yes, which voluntary sector services do you commission and how much did you spend on them in 2016/17?
- Emotional and psychological support for children and their families (yes/no)?
- Bereavement care – to families before a child under the age of 1 has died (yes/no)?
- Bereavement care – to families after a child under the age of 1 has died (yes/no)?
- Bereavement care – to families before a child or young person aged 1 – 25 has died (yes/no)?
- Bereavement care – to families after a child or young person aged 1 – 25 has died (yes/no)?
- Equipment (yes/no)?
- Do you commission any of the following services to provide care out of hours and at weekends for children with life-limiting or life-threatening conditions? We define ‘out of hours and at weekends’ as 6:30pm – 8am on weekdays and all day on Saturdays, Sundays and Bank Holidays.
- Voluntary sector children’s palliative care services (including children’s hospice services) (yes/no)?
- Emotional and psychological support for children and their families (yes/no)?
- Bereavement care – to families before a child under the age of 1 has died (yes/no)?
- Bereavement care – to families after a child under the age of 1 has died (yes/no)?
- Bereavement care – to families before a child or young person aged 1 – 25 has died (yes/no)?
- Bereavement care – to families after a child or young person aged 1 – 25 has died (yes/no)?
- Equipment (yes/no)?
Please note that Devon County Council is not responsible for the commissioning of palliative care for children and young people and therefore does not hold the information requested. This is provided by NEW Devon CCG and South Devon and Torbay CCG in Devon. Please contact them directly using the information on the links provided to obtain this information.