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Support and information from national and local organisations

Note: Inclusion of a link to another organisation's web site does not constitute a recommendation or endorsement of that organisation or site by Devon County Council.

Devon County Council - Physical Disabilities information, support and advice about services

Addisons Disease

• Addisons's Disease Self Help Group support group for men, women and children diagnosed with Addison's Disease (or adrenal insufficiency).

AIDS/HIV

• AVERT is an international HIV and AIDS charity based in the UK, working to AVERT HIV and AIDS worldwide.
• Positive Action South West offers a holistic response to the needs of people living with HIV and their carers
• Terrence Higgins Trust whatever your sexuality, HIV status, gender, cultural background or ethnic origin, THT has services set up with your needs in mind. If you’re affected by HIV, then we’ll try to help.

Ankylosing Spondilitis

• National Ankylosing Spondilitis Association NASS is the only registered charity in the UK working for people with AS and their families.

Arthritis

• Arthritis Care aims to make a positive difference to the lives of people with all forms of arthritis.
• The Arthritis Research Campaign a medical charity.which offers arange of leaflets for patients about specific diseases, investigations, drug therapy and other treatments.
• Rheumatoid Arthritis Society support and information for people with Rheumatoid Arthritis and Juvenile Idiopathic Arthritis.

Asthma

• Asthma UK information and advice.
• Buteyko Breathing Association(pronounced Bu-tay-ko) is most commonly used as a treatment for those with asthma and other breathing disorders.

Ataxia

• Ataxia UK charity for people with ataxia, their families and carers

Back Pain

• BackCare is a national charity that aims to reduce the burden of back pain by providing information and support, promoting good practice and funding research.

Balance

• Balance Interest Group inform people about the nature of the balance system, and offer advice on how to proceed with problem solving if they have a balance problem

Blood Pressure

• Blood Pressure Association fighting high blood pressure to beat stroke and heart disease

Brain and Spine

• Brain and Spine Foundation have a wide range of information on neurological symptoms, conditions and treatments

Brain Injury

• Headway Devon information and support for people with acquired brain injuries .

Cancer

• Macmillan Cancer Support improves the lives of people affected by cancer
• Marie Curie Cancer Care provide free nursing care to cancer patients and those with other terminal illnesses in their own homes.
• Leukaemia Research is the only charity in the UK dedicated exclusively to researching blood cancers and disorders including leukaemia, Hodgkin’s and other lymphomas, and myeloma.
• The Lymphoma Association provides emotional support and information on a range of issues to anyone with lymphatic cancer and to their families, carers and friends
• The Prostate Cancer Charity provides support,information and funds research. They also run a series of activities around the UK.
• Breast Cancer Care services for people affected by breast cancer ,offer support and information.
• Cancer Research UK, dedicated to cancer research website has a wealth of information about cancer.
• Penny Brohn Cancer Care. offer specialist support including complementary therapies, nutritional advice & counselling for people living with cancer & their loved ones.
• Jo's Cervical Cancer Trust (Jo’s Trust) is the only UK charity dedicated to women and their families affected by cervical cancer and cervical abnormalities.

Cerebral Palsy

• Path for the disabled ltd conductive education for children with cerebral palsy and for adults who suffered a stroke to achieve greater independence.
• Scope the disability organisation in England and Wales whose focus is people with cerebral palsy.

Clubfoot

• Steps national charity supporting those affected by a lower limb condition such as clubfoot or a hip condition.

Coeliac Disease

• Coeliac UK is the leading charity working for people with coeliac disease and dermatitis herpetiformis

Colitis and Crohn's Disease

• The National Association for Colitis and Crohn's Disease (NACC) brings together people of all ages who have Crohn's Disease or Ulcerative Colitis

Cystic Fibrosis

• The Cystic Fibrosis Trust is the UK's only national charity dedicated to all aspects of Cystic Fibrosis

Diabetes

• Diabetes UK working for people with diabetes, funding research, campaigning and helping people live with the condition.

Disfigurment

• Changing Faces a national charity that supports and represents people who have disfigurements of the face or body from any cause.

Downs Syndrome

• The Down's Syndrome Association provides information for people with Down's syndrome, their parents and carers and the professionals who work with them.

Eczema

• Eczema Voice - for people with eczema
• National Eczema Society offering help and information to everyone affected by eczema.

Epilepsy

• Epilepsy Action is the largest member-led epilepsy organisation in Britain, acting as the voice for the UK's estimated 456,000 people with epilepsy.,
• National Society for Epilepsy provides up to date information on all aspects of living with epilepsy, from driving, employment and pregnancy to leisure, travel and medication.

Fibromyalgia

• UK Fibromyalgia  the site for fibromyalgia sufferers
• Fibromyalgia Association UK raising awareness of FM
• FibromyalgiaSyndrome contains over 80 articles written by our experts who continually update and add new content

Heart Disease

• HEART UK - The Nation’s Cholesterol Charity - passionate about preventing premature deaths caused by high cholesterol and cardiovascular disease.
• British Heart Foundation 'Our vision is of a world in which people do not die prematurely of heart disease'

Haemophilia

• The Haemophilia Society is the only national and independent organisation for all people affected by bleeding disorders

Hypermobility Syndrome

• Hypermobility Syndrome Association aims to provide support and information to those affected by the Syndrome and to promote knowledge and understanding within the medical community and the public at large.

Huntington's Disease

• The Huntington's Disease Association exists to support people affected by the disease and to provide information and advice to professionals whose task it is to support Huntington's disease families.

Incontinency

• The Bladder and Bowel Foundation, (formerly Incontact and the Continence Foundation) the UK’s leading charity providing information and support for people with bladder and bowel disorders, their carers, families and healthcare professionals.

Irritable Bowel Syndrome

• The Gut Trust national charity for people with irritable bowel syndrome in the UK

Kidney Disease

• UK National Kidney Federation is the national charity in the United Kingdom Run by Kidney Patients for Kidney Patients.
• The British Kidney Patient Association is a UK registered charity, working to improve the quality of life for adults and children with chronic kidney disease.

Liver Disease

• British Liver Trust is the national charity working to reduce the impact of liver disease in the UK through support information and research.

Lung Disease

• British Lung Foundation is the only UK charity working for everyone affected by lung disease

Motor Neurone Disease

• Motor Neurone Disease Association offer support and information

Multiple Scherosis

• Multiple Sclerosis the MS Society is the UK's largest charity for people affected by Multiple Sclerosis.
• South West MS Centre offer a range of therapies including high dosage oxygen therapy, physiotherapy, reflexology, massage therapy, counselling, yoga and tai chi, employing professionally qualifies therapists.

Multiple System Atrophy

• Sarah Matheson Trust for Multiple System Atrophy support for people with the neurological disorder Multiple System Atrophy (MSA)

Muscular Dystrophy

• Muscular Dystrophy Campaign is the only UK charity focusing on all muscular dystrophies and allied disorders.

Myalgic Encephalopathy ME

• ME Association providing information, support and practical advice for people who are affected by ME/CFS/PVFS (Myalgic Encephalopathy/Chronic Fatigue Syndrome/Post Viral Fatigue Syndrome) and their families and carers; funding and supporting research and providing education & training
• Support ME was established by a recovered ME/CFS sufferer as an online resource for sufferers of ME, Chronic Fatigue Syndrome and CFIDS
• ME Free For All. a single meeting place for people with M.E., their carers, doctors and researchers to gather.
• Action for ME dedicated to improving the lives of people with M.E.
• Leger ME when people have M.E. the way forward may not be obvious, things may seem out of proportion and remote.
  We are here to help and guide.

Osteoporosis

• National Osteoporosis Society a national charity dedicated to improving the prevention, diagnosis, and treatment of this fragile bone disease.

Paget's Disease

• The Paget’s Association is the one UK organisation that focuses solely on this condition.

Parkinsons Disease

• The Parkinsons Disease Society support and education for people with Parkinsons their families, friends and carers

Psoriasis

• The Psoriasis Association if you have psoriasis, or if you know someone who does, then this site is for you.

Sciatica

• SCIATICA CLINIC Sciatica is the term given to pain down the leg, which is caused by irritation of the main nerve into the leg, the sciatic nerve.

Spina Bifida

• ASBAH is the leading UK registered charity providing information and advice about spina bifida and hydrocephalus.

Spinal Injuries

• The Spinal Injuries Association a user-led organisation which aims to provide appropriate services for spinal cord injured people from the moment of injury and for the rest of their lives.
• Aspire support to promote independence for people with Spinal Cord Injury.

Stroke

• The Stroke Association information for individuals and families.
• Different Strokes is a registered charity providing a unique, free service to younger stroke survivors throughout the United Kingdom.

Thyroid

• British Thyroid Foundation aims to provide clear information on all types of thyroid disorders, to provide support and raise awareness
• Thyroid UK providing information and resources to promote effective diagnosis and appropriate treatment for people with thyroid disorders in the UK"