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devon.gov.uk

Wednesday 19 November 2008
Sensory Disability

Sensory Disability

Deafblind

Symbol for hard of hearing.What is deafblindness?

The Department of Health describes deafblindness, or dual sensory impairment, in broad terms:

Persons are regarded as deafblind if their combined sight and hearing impairment cause difficulties with

  • communication Shaded eye symbol.
  • access to information
    and
  • mobility

These difficulties are vast when you consider that some people can be:

  • born deafblind, or
  • born deaf and lose vision later in life, or
  • born visually impaired and acquire a hearing loss later in life, or
  • born with hearing and sight but lose both these senses at some stage

The majority of deafblind people are over the age of 60 and come into the last group above.

The needs of all these groups are very different, especially people born deaf or prelingually deaf, with the consequent difficulties of developing language and speech.

Deafblindness is a distinct impairment that is more than 'just' the loss of your vision and hearing. It is a unique impairment. The impact of a dual loss is significantly different from a single loss as the individual's ability to compensate is greatly reduced.

Just as the coping strategies and skills required by each deafblind individual are different, so are the support services they require.

Deafblind Guidance

In March 2001 the Department of Health issued Social Care for Deafblind Children and Adults - LAC (2001) 8 under Section 7 of the Local Authority Social Services Act 1970. Although referred to as 'Guidance' this circular has placed new statutory duties on all local authorities.

The Guidance in brief

The new responsibilities of Devon County Council are to:

  • identify, make contact with and keep a record of deafblind people in their catchment area (including those who have multiple disabilities including dual sensory impairment)
  • ensure that when an assessment is required or requested, it is carried out by a specifically trained person or team, equipped to assess the needs of a deafblind person - in particular to assess need for one-to-one human contact, assistive technology and rehabilitation
  • ensure that appropriate services are provided to deafblind people, who are not necessarily able to benefit from mainstream services or those services aimed primarily at blind people or deaf people who are able to rely on their other senses
  • ensure they are able to access specifically trained one-to-one support workers for those people they assess as requiring one
  • provide information about services in formats and through methods that are accessible to deafblind people
  • ensure that one member of senior management includes, within their responsibilities, overall responsibility for deafblind services.

The definition of deafblindness above means that anyone who has both a hearing loss and a sight loss that cause them problems in everyday life is covered by the new guidance. People do not have to be completely deaf and blind.

Further information on the implementation can be found in Social Care for Children and Adults: a practical guide, produced by Sense. image - PDF icon (871KB - pdf help)

Services in Devon

The Devon Sensory Team has a wide range of experience in working with deafblind people and all rehabilitation and social workers are trained to undertake assessments.

The majority of deafblind people in Devon are elderly and have lost their sight and hearing progressively. Where people are agreeable, their names are entered on Devon’s record of people who are deafblind. It is intended that such information will be used for future planning purposes.

Given the latest definitions of deafblindness above, that record will grow steadily and will include some people with complex needs who may require a range of specialist services.

The Sensory Team does not employ a deafblind specialist due to expertise within the team. In some instances specialist rehabilitation workers for the visually impaired and hearing impaired work together to ensure that specific needs arising from dual sensory loss are identified and action taken. This way of working is not uncommon across the UK and is generally well accepted by the relevant national organisations.

Increasingly, as the needs of deafblind people are recognised, support services will emerge. Staff in health and social care services are being encouraged, through awareness training, to identify people and make their needs known. Devon has trained guide communicators who work directly with deafblind people to facilitate their safe access to information and everyday facilities to promote independence. The intention is to make this service more uniformly available across Devon.

Independent communication support in various forms, including the deafblind manual, is also available to give deafblind people access to the services they need e.g. health services. Similarly, every effort is made to ensure Social Services literature is available in a variety of formats, and access to staff and services generally is made as easeful as possible.

The Sensory Team has also developed ‘centres’ with other organisations where individuals or organisations can seek information, advice and guidance on a variety of matters relating to sensory loss including equipment to aid daily living. Further information on those ‘centres’ is available on these sensory web pages.

See also:

Contact:

The Devon Sensory Team at:

e-mail: sensory@devon.gov.uk

  • Exeter, East, Mid Devon
    Tel. 0845 155 1007
    Fax. 01392 383 767
    Textphone. 01392 383 733

  • North Devon, Torridge
    Tel. (includes text) 01271 377 455
    Fax. 01271 373 236

  • South Hams, Teignbridge, West Devon
    Tel. 01392 386 623
    Fax. 01803 868 807
    Textphone. 01803 868 818